Saturday, September 25, 2010

main blog

I actually have a different blog on CCSVI Locator at http://ccsvi-ms.ning.com/profiles/blog/list?user=287v2u2acj2pp

2 months today

Today is 5 September. I had the CCSVI procedure done in New Delhi, India on 5 June. I had immediate benefits, but I re-stenosed and then had my veins re-opened in Los Cabos Mexico on 5 Aug. So today is two months after the 1st procedure and one month after the second.

I was diagnosed with RR MS in 1997, then it became SP MS last year in 2009. I had been unaffected in between attacks but last year my right side started to get progressivly weaker and less responsive. I was choking on liquids, limping, walking with a cane but not very far, and falling down. Besides the usual MS fatigue, heat and cold sensitivity, and bad vertigo that had kept me from driving since last summer. Handwriting (when I could write at all) looked like a child's. Brain fog. Etc. Then it started spreading to my other side.

After the first procedure, the progression stopped. My progress was uneven, and then backward, so I had it resone. Now, I have good days and bad days. On my good days now I sometimes drive. I even am able to go into a store and buy something. I have walked to the end of my block, without my cane.

Well, today I walked all the way around my block. Slowly, limping, but I did it. I almost cried. It's a personal milestone for me. I do mild stretches daily and walk every other day.